“You matter because you are you. You matter to the last moment of your life, and we will do all we can, not only to help you die peacefully, but to live until you die.”
-Dame Cicely Mary Saunders
Founder of the modern day hospice movement.
Family Hospice Care provides links to the following sites to help our community locate hospice care and end-of-life information. The organizations and web sites listed will change periodically as the resources grow and change. Family Hospice Care is not responsible for the content of these sites, nor does it make any endorsements to the organizations.
American Association of Homes and Services for the Aging
The members of the American Association of Homes and Services for the Aging serve two million people every day through mission-driven, not-for-profit organizations dedicated to providing the services people need, when they need them, in the place they call home. The association represents 5,600 mission-driven, not-for-profit nursing homes, continuing care retirement communities, assisted living and senior housing facilities, and community service organizations.
California Hospice and Palliative Care Association
The California Hospice and Palliative Care Association advocates for those facing life-threatening illnesses. They provide technical resources, monitor legislative and regulatory activities, and work closely with other organizations that share an interest in end of life care. They serve both California and Nevada.
Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer and community engagement initiative to improve care at the end of life. Since 2004 Caring Connections has provided more than 1.3 million advance directives to individuals free of charge. This site also offers the ability to download your State Specific Advance Directives.
Hospice Foundation of America
A not-for-profit organization assisting those who cope either personally or professionally with terminal illness, death, and the process of grief.
Hospice and Palliative Nurses Association
The purpose of the HNPA is to exchange information, experiences, and ideas; to promote understanding of the specialties of hospice and palliative nursing, and to study and promote hospice and palliative nursing research.
POLST-Physician Orders for Life-Sustaining Treatment
The POLST is a form that states what kind of medical treatment patients want toward the end of their lives. Printed on bright pink paper, and signed by both a doctor and patient, POLST helps give seriously ill patients more control over their end-of-life care.
The Centers for Medicare & Medicaid Services (CMS)
The Centers for Medicare & Medicaid Services (CMS) is a federal agency within the U.S. Department of Health and Human Services. CMS runs the Medicare and Medicaid programs - two national health care programs that benefit millions of Americans.
National Hospice and Palliative Care Organization
The goal of NHPCO is to educate about and advocate for the fundamental philosophy and principles of hospice care to meet the unique needs of each terminally ill person and his or her loved ones.
Mesothelioma Cancer Center
An advocacy group that assists patients and families suffering from asbestos-related illnesses such as lung cancer and Mesothelioma. They provide many different types of assistance including helping patients find the best local doctors, treatment centers, and assistance for veterans in receiving VA benefits-all free of charge.